Adalia Rose Bio

(American Social Media Star Afflicted With a Rare Genetic Disorder Called Progeria)

Birthday: December 10, 2006 (Sagittarius)

Born In: Round Rock, Texas, United States

Adalia Rose was an American social media star afflicted with a rare genetic disorder called progeria or Hutchinson-Gilford progeria syndrome (HGPS), which causes accelerated ageing; the disorder gave her the look of an old woman. She became famous when her mother set up a website and a page on Facebook to help her family keep a track of her progress. Her spunky attitude in the face of such adversity struck a chord with the general public. Even after knowing that she may not be able to live for long, she was very lively and full of life. She created many videos that proved she took all the problems in her stride and enjoyed life to its fullest. The videos not only made her famous but also brought to the notice of many how to cope with a situation from which recovery is almost impossible. With over 2.91 million YouTube subscribers and 12 million Facebook fans, Adalia Rose had a huge following on social media. 

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Quick Facts

Died At Age: 15

Family:

father: Ryan Pallante

mother: Natalia Amozurrutia

siblings: Marcelo (younger brother)

Born Country: United States

Died on: January 12, 2022

U.S. State: Texas

How Adalia Rose Became Famous

The disease that afflicted Adalia Rose is a very rare one and very few children suffer from it. Adalia caught the attention of the people on social media when her condition first came to light. Children suffering from progeria are born healthy and remain so for the first 10 to 24 months of their life. After this they start to show signs of aging at a very fast rate. Soon they take on the appearance of a very old person. The same thing happened in the case of Adalia but it did not stop her from being vocal about her disease. She took to social media and shared with people how much she enjoyed being with her family. She appeared in videos promoting the cause of finding a cure for this disease. The proceeds from these videos are used for the research on the causes of this disease and the treatment of other children affected by progeria. She had more than 12 million fans on her Facebook page and over 2.91 million subscribers on her YouTube channel.

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What Made Adalia Rose So Special

Adalia Rose suffered from a rare and fatal disease called progeria which has been derived from the Greek word progeros meaning premature aging. According to the National Organization of Rare Disorders (NORD), there are only about 400 children in the world living with progeria at any given time. This disease causes the body to grow older approximately six to seven times the normal rate. Though Adalia had the mind of a normal teenager and acted like one, she looked like a small old lady seventy to eighty years old.

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Her appearance produced different reactions in different people but her enthusiasm in telling the world that she enjoyed life with her parents and younger brother is something that made her so popular on social media. Despite her distress, she always bore a smile on her face and asked people to enjoy life as much as they can by disregarding the problems it can create. Her brave attitude towards life helped her make a special place for herself in the minds of her fans who loved her despite her appearance. The way Adalia Rose sang and danced in the face of probably the most insurmountable odds made her popular as a very brave girl.

People’s Reaction Towards Adalia Rose

The appearance of Adalia Rose created mixed reactions in people. While some showed pity and compassion for a small girl affected by such a fatal disease, others felt that she should not post her videos. Her appearance was compared to aliens and extra-terrestrial beings by some, while others found the love and affection showered on her by her parents and friends very appealing. She was subjected to online bullying and also received death threats on the internet. In spite of all this, Adalia Rose continued to remain a very lively girl and made people aware of this rare disease through videos and promotional appearances.

Family & Personal Life

Adalia Rose was born on 10 December 2006, in Round Rock, Texas, United States. She lived in Austin, Texas, with her step father, Ryan Pallante; mother, Natalia Amozurrutia, and younger brother, Marcelo. She was very active on social media and that is what made her very popular among netizens.

Adalia Rose Death

Adalia Rose passed away of Hutchinson-Gilford progeria syndrome on January 12, 2022. The news of her death was communicated through her Instagram and Facebook accounts, which read: "January 12, 2022 at 7pm Adalia Rose Williams was set free from this world. She came into it quietly and left quietly, but her life was far from it." She was 15 at the time of her death.

Trivia

In 2019, on the occasion of her 13th birthday, Adalia Rose got the surprise of her life, when Jennifer Lopez’s designer Michael Costello gifted her two dream dresses. One of the gowns was a Princess Jasmine costume from the film Aladdin while another was a one-shoulder fuchsia showstopper similar to what Jennifer Lopez has worn in the music video Jenny From The Block.

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